Evie Hodgson was diagnosed with Very Severe Aplastic Anaemia during the coronavirus lock-down.
A potential transplant operation in August fell through and now Evie is having weekly blood and platelet transfusions.
Evie and her mum Tina spoke to Paddy @ Breakfast...
Initially it seemed that Evie had been lucky as a match for the transplant was found quickly and the procedure was planned to take place in August. But just a few weeks before the planned transplant date the plans fell through.
The search for a new donor has been continuing ever since, and now doctors are persuing another form of treatment.
Tina explains more...
Tina says a transplant would be life changing for Evie
Tina says Evie is missing her 'normal life'
Potential donors can register for a swab test kit either with the Anthony Nolan trust if they are under 30 years old or with DKMS if they are over 30.
Under the age of 30, register with Anthony Nolan https://www.anthonynolan.org/8-ways-you-could-save-life/donate-your-stem-cells
Over 30 years old, register with DKMS https://www.dkms.org.uk/en/register-now
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